Friday, December 23, 2022

The Caulker

I was driving my dad the 100-mile journey to get chemotherapy at Northwestern Memorial Hospital. Usually, he was driven by close friends, the kind of friendships measured in decades. My dad taught me to drive, the only one of my Bubbie's grandchildren to not be taught by her; a tradition stolen by Parkinson's disease. Dad's driver's academy was located in the rocky parking lot of the now non-existent South Bend Freight Line - a casualty of the policies of union deregulation. The vehicle was a 1988 Toyota Camry. The lessons began when I was 12. He was a tough, but excellent teacher, and I do consider myself a good driver. DNA cannot be discounted, though: I drive like my mom, fearlessly and with some emphasis on the gas.

The only reason he let me drive to Chicago get his "poison," as he called it, is because he had a bunch of business to conduct during the drive. Seventy-eight, transplanted liver, two types of cancer lurking in his body, on chemo, and doing business on the way to Chicago. 

As I merged onto the Toll Road off exit 83, he joined an 8 a.m. Zoom meeting. He was on some committee with the city of South Bend. The agenda was short: he seconded the minutes of the previous meeting's agenda and then it was over. His ring tone - the theme song from Downton Abbey - blared loudly. The caller was from the funeral home that handled most of the Jewish burials in town - the same one that would handle his three months later. They wanted to find out the Jewish observance level of someone who had just died. Why the funeral director called my dad, and not the Rabbi, I'm not sure. But my dad knew the answers right away: "first husband was Jewish, but second isn't. One kid is Orthodox, divorced, many kids; one kid is gay has a Jewish partner, attends the Temple, and one kid is married to a nice Catholic lady." The next phone call was an interview with a female truck driver. My dad encouraged her, but without being saccharine. He gave her the pros and cons of working in the field, especially some of the obstacles she might face being in the business. It turned out she didn't have the right kind of rig, but he said to call him back if she did.

We arrived 30 minutes early to the series of appointments. Fairly quickly the phlebotomist yelled his name. All of the phlebotomists yell. Perhaps many of the patients are hard of hearing. Once he had his blood drawn, he officially transformed from a respected businessman to just another cancer patient. And then we waited. My dad was texting and emailing furiously. I was bored. And then something or someone caught my eye. There was a man, hanging from the 21st floor, caulking the building. In the winter, Chicago is unbearably cold. Hospitals design their buildings with beautiful windows, but if the building is not insulated properly, the heating costs could be enormous, or worse, the heat just wouldn't protect against the cold winds more than 200 feet up.

"What are you looking at?" my dad grumbled.

"Check out that guy, dad" I said.

He didn't look up from his tablet. He was reading a contract.

Suddenly, I had the urge to photograph him. Not my dad, but the caulker. I'm not a great photographer. I used to publish photos to illustrate the police blotter when I was a cub journalist: house fires, car crashes, even a hit and run. As a working journalist, I would never ask permission to photograph someone.

I knocked on the window, softly enough to get his attention, but not loud enough to cause, God forbid, an accident.

I mouthed a few times before he understood, "May I photograph you?"

He mouthed back, "Sure."

I took dozens of photographs of him from different angles. The cancer patients and their caregivers or drivers were either pretending not to look at me or were also delighted by the intricate work of the caulker.

"Glad those two journalism degrees are getting some use," my dad teased. "Make sure you wash your hands after touching the floor."

I tapped on the window one last time and mouthed "thank you." As my dad commanded, I washed my


hands.

The nurse finally called his name, a bit softer this time. The appointment was uneventful at first. The doctor and I played Jewish geography until the big reveal.

I came to know that my dad was taking 22 pills a day.

22.

It was thought that these pills were giving him more time to be a husband to my mom, a dad to us, a Zadie to his grandchildren, serve on boards, make money, give advice to a funeral director, but he was also suffering from a lot of side effects that only those closest to him, especially my mom, knew about. How many people with chronic illnesses suffer silently? Does the smartest person in the room go home at night to neuropathy, fatigue, and the kind of stomach problems that causes you to drop 65 pounds in a year. 

The chemotherapy wasn't caulk; it didn't insulate the building, but brought it down along with the rest of what was to come. 

We walked back to the chemo area. It's a huge expanse where about 50 people were receiving chemotherapy. I wondered how much money Northwestern made in a day off of this production. 

....

That sounds cynical. Northwestern is an incredible hospital. We owe 9 years of my dad's life to Northwestern. It's where he received a liver transplant. But at the end of his life, it felt to me like they dropped him. When he first needed to be brought to the hospital after he contracted Covid and had a fall, their response to the local doctor was "don't bring him to our ER." 

My dad didn't have that much time left in this world - a couple more years at best. And who knows what kind of quality of life he would have had. Probably not great. But that "don't bring him to our ER" still stings. I understand their ER was probably full at that moment. And who knows who answered the phone. But your transplant patient with two types of cancer who is receiving chemo at your hospital should probably be seen at your hospital by your doctors so... 

We all know anger is a stage of grief. 

....

They showed him to his room.

"I've said this already," he said firmly. "I'm not that sick. I don't want a room. A curtain with a chair is fine. Give the room to the sick people."

The nurse found him a non-room room and the chemotherapy began. Jimmy was a traveling nurse from West Virginia. He had been all around the US, but had only been in Chicago for a few weeks. He liked it so far. He was staying at a motel pretty close to my old condo in Lakeview, but was looking for a cheap rental. After Jimmy hung the IV bags, Dad asked me if we should call Eric to help Jimmy find an apartment to rent.

"Dad, Eric doesn't really do rentals so much. He's busy selling houses. Besides, every time you come here, are you going to ask Eric to find a rental for a nurse?"

He didn't hear my pithy response. Dad was asleep. Although he hadn't wanted a bed because he wasn't that sick, he looked pretty ill to me.

...

After the chemo treatment, Dad wanted to drive back to South Bend. I said, "no way." He had just had six hours of chemo. In no world did driving 100 miles after that much chemotherapy sound like a great idea.

"Fine," he lied. “ But watch how you're turning that corner. You're driving too fast for a parking garage."

"Dad, I'm 46 years old. I know how to drive." 

"Fine. I won't say anything. Tell me when you get lost." 

I knew he was angry with me. 

During that visit  last July he was often aggravated and annoyed with me. My last day before returning to Israel, my entire family, Eric's crew, R-Jay's crew, my mom, all went to get frozen yogurt. As I was sitting with my nephew Adam, my dad said, "I'm sorry for the way that I treated you the last two weeks, but a lot of times you deserved to be treated that way." 

I thought I was going to cry. I wasn't expecting an apology, but this was not what I wanted either. So I retorted, "I'm sorry that you don't know how to apologize." 

And then he looked at me. My dad had the most beautiful hazel eyes. And he looked at me with his beautiful hazel eyes, almost bewildered, and said,  "Sharna, it's the pills. It's the goddamn pills. I just don't know who I am anymore with these pills." 

"I know, Dad. I know. It's fine. It's fine."

...

The three days I had with my dad in October, before he was incoherent and passed away, he was no longer affected by that chemo mania. He was in some ways more himself, although obviously not 100 percent because he was dying. On those days, when I assured him everything would be fine, it wasn't a platitude, it was true. I was reassuring him that my mom, my brothers, that I would be fine.

And we are fine. But I'd give anything for another driving lesson. 


This post is dedicated to Dr. Mark Sandock, Bill Lopatin and Bill Beelaert, my dad's friends who drove him many, many times to Chicago for early morning appointments often returning in the evenings. 


Wednesday, December 14, 2022

Teach your parents well

Today a short post dedicated to my beloved daughter and teacher, Maya. 

Maya didn't look well last night so I arguably prematurely took her to urgent care. My husband is away, and if he were here, there's no way we would have taken her. But after the trauma of losing my dad, I just don't have an equilibrium for a serious cough vs. a not serious cough, and she looked pale and has a history of out of the blue pneumonia. 

After my lovely friend and colleague Sara agreed to watch Ben, Maya and I journeyed to downtown Netanya, which is always an adventure. Several kilometers away, parking is impossible, smoking is the norm, and maybe? because of the night's world cup game, drunk middle aged men were on the street who didn't look like they'd be conscious for the first quarter. The clinic opened at 7:30 p.m. and the frequent visitor to the clinic let us know that we would be third in line. Maya "left" her book in the car and looked at me with her sad, red eyes and asked for my phone. As I prepared my AP Euro test, we were called back. Maya described her illness in her sweet Hebrew. The intake nurse was unimpressed. We were seen by a doctor right away (come early), and he said she sounded good. He gave her Tylenol and prescribed cough syrup, which I googled was the generic for Benadryl. 

She and I were both relieved. The stakes were high. Maya had a a very big role in holiday show at her school. The principal had sent out an email that day to not send sick kids, no matter what, to school sick to be in the holiday show. Maya was so excited for her role.  Maya's grandparents were coming to see her perform for the first time and staying with us during the week! And although it was sad our "American family" couldn't come, she would be wearing one of her cousin Lila's beautiful dresses, so they would be with us in spirit. 

...

This morning when Maya woke up, and I gave her a hug and felt her burning skin, I  swallowed the tear welling in my eye. 

"Maya my love, we have to take your temperature," I said. 

39.2 degrees. 

A decade living here, I still don't know the conversion to Fahrenheit, but I knew she wasn't going to be in that play. 

Her little brother, Ben, looked at the thermometer and whispered, "Oh no! The show." His empathy quickly waned and he started yelling, "No! Saba and Savta. I want them to come here. This ruins everything." 

Maya sent him a death stare and I urged her not to respond. But she did, just not angrily towards him. "It's okay, I'm used to being disappointed."

I gave Maya medicine and rushed to make arrangements for Ben to get to school. He would be leaving 30 minutes earlier than normal, which meant I'd need to rush a pissed off kid and still needed to make his snack. And I needed to call in for a sub. Luckily, I had already asked my colleague Zohar to cover one of my blocks so I could see the morning production of the show, so that was all set. 

After the Tylenol kicked in a bit and Ben was off to school thanks to our neighbor Lulu, I told Maya how sorry I was that she wasn't going to be in the play. 

She looked at me and smiled and said:

"Mommy, it's okay. There will be other plays." 

And this is why Maya is my teacher. Because she's right.

 I have to be honest. There was a millisecond where I considered dosing her to hide that fever so she could be in the play. Who would know? She's had the cough for a month. I tested her for Covid. I would NEVER send her to school with Covid. But a fever. What's a fever? And she's worked so hard. And everyone says she so good in it! But I didn't. I didn't. Because you just don't do that. Because it's an elementary school play and there will be other plays, or there won't, but you don't send your kids to school sick. I was tempted, though. 


Maya taught me this lesson a few weeks ago. For the first time we finally found her a real soccer team to play on. It's a girls soccer team in Netanya. But there's not that many other girls soccer teams in Israel, I guess, so after practicing for months her first games (and maybe only games, I'm not sure) are when we are going to the US. The first one is on the evening we leave for the airport. I said to Maya,

"Maybe we can go the game and then go straight to the airport?"

"Mom, that's crazy," Maya said. "I'll be all sweaty. Then we are traveling for 25 hours. No thank you." 

It's not that Maya's not a dedicated soccer player. She is excellent. She is just reasonable. (Makes me think of my dad.)

There will be other plays. There will be other soccer games. 

But there's only one Maya. 





Professional Photos by https://www.efratsaar.com/

Thank you Mrs. Goldstein for a wonderful musical experience! 


Monday, August 8, 2022

Teachers teaching about the Holocaust need help - 2022 style

Does anyone have a good pre-reading activities for the book thief or the Holocaust in general? TIA

Looking for an introduction video to the Holocaust that is appropriate for 8th grade. Thank you!
Has anyone taught a Holocaust elective? I would appreciate any materials you're willing to share - pacing, films, readings, etc.

Does anyone have a good visual lesson on the Holocaust that covers more than just Jewish persecution? Maybe some type of image analysis, or video?

School is about to start and #teachertwitter is flying. Many teachers use social media to enhance their professional practice. Often times, teachers request resources planning a Holocaust or Shoah related unit.  Occasionally there is an intellectually challenging request, but typically the questions are of the emergency sort: Help! I have to teach about the Holocaust! Does anyone have any resources? 




In 2019, I wrote an article for EJewish Philanthropy expressing the need for cyber Holocaust educators. The plea was based on educator social media groups where teachers reaching out had little to no knowledge of the Shoah. 


Fast forward several months later and Covid-19 hit; every teacher would become a cyber educator. Our entire craft became virtual, and every social media outlet would be filled with teachers leaning on each other for lessons and ideas. Our vulnerabilities were exposed, and they reflected the same challenge: how do we engage students on unfamiliar platforms during a deadly pandemic while they are experiencing their unprecedented challenges from isolation to trauma with our own families depending on us at home?


Besides addressing that small question, educators also used the era of Covid-19 to openly exchange lesson plans and ask questions about content. Once again I noted that many teachers teach about the Holocaust and know very little about it. I would find myself taking a lot of time to respond to these posts out of a sense of duty.  I still do. However, I am one person in two social media groups, with two children, and a full teaching load. There are so many teachers who could use help, including the teachers that I don’t know about. 


Back to Covid-19 era: In addition, on Twitter, there were parents listening to their children’s lessons and then expressing outrage at their ignorance while teaching Holocaust related lessons. The Tweeters would implore them to call [insert Jewish organization, administrator] and urge them to have the teacher disciplined or fired. When I would read about one of these teachers, I would cringe and wonder if she had posted that week on some teacher group asking, “Can someone help me? I was just brought in to do a maternity leave for a teacher, and I have to teach about the Holocaust.”


Then, in January 2022, my respected colleague, friend, and Holocaust educator and writer, Matt Lebovic, and I came up with a plan. As the founding director of the Holocaust Education Center of StandWithUs, he had shared with me that he successfully Zoomed a lesson with a large public school in Philadelphia, I suggested that I share his offerings with one of my closed history teachers’ group. (The group has several thousand members). After posting, Matt received takers who scheduled him to speak to their classes or referred him to their colleagues who needed his assistance.


Where Matt’s impact could really be felt would be on one of the closed English teachers’ group that has 21,000 members. That post received more than 100 likes, dozens of comments and tags. Matt Zoomed with students from all of the US and Canada.  


I hope that Matt will serve many more teachers and schools. However, I am once again imploring the organizations and museums that educated and inspired me twenty years ago to modernize their outreach to teachers. There are a lot of resources going into the technology of holograms, Tik Tok, and 4D experiences. As much as I admire the innovations, legacy organizations must also focus their energies on outreach to educators who are not Jewish on the platforms in which they are seeking resources. What is the use of excellent content, and there is so much excellent content out there, if those who need it most do not [have or know to] access it? 


While we are all quick to condemn those who are ignorant, we need to be just as fast at offering assistance when it is needed. 




Sunday, June 26, 2022

22 Women

As the anniversary of the overturning of Roe v Wade approaches, I thought I'd update an article I wrote a couple of years ago.

I can think of 22 women off of the top of my head who have had abortions. Many of them would be unable to today if they lived in the same states in which they received their original medical care. 

Nine of the women aborted due to fetal anomalies. Of the twenty-two, I know at least three who had to do so during the second trimester because the anomaly developed or was only able to be seen during the second trimester. In one case, the person initially was told, after learning her fetus would not survive (incompatible with life), that she would have to have the abortion out of state. But they found out that they could do an induction early and remain at their home hospital.

Five were teenagers or not in stable relationships and didn't feel ready or interested in having a child.

Three were married but couldn't handle more children.

Three were in bad marriages and couldn't cope with more children and being in a bad marriages.

One was married with two children but was destitute and couldn't afford a third child or the medical expenses involved in prenatal care and recovery from what would be a third c-section.

One was raped. 

For these twenty-two women, abortion was part of their healthcare, both physiological and psychological. It still makes no sense to me why the government is involved in these decisions.

"That woman, that family, might seek spiritual guidance, they may seek medical guidance, but that decision is not going to be made any better medically or morally, because the government is dictating how that decision should be made," answered Pete Buttigieg when he was pressed on Fox News about third trimester abortions, which are extremely rare, when he was running for President.

I understand and respect that for men and women who oppose abortion that this is a deeply religious issue. They really feel that they are doing God's work by banning abortion. A woman's right to healthcare does not supersede that for them. However, they shouldn't be deciding the law of our land.


For five of the six Supreme Court Justices who overturned Roe v. Wade, they weaponized the law to serve their religious dogma. Catastrophically, they created a health care situation that puts the United States way outside the human rights bounds for women living in like-countries (ones in the EU, Israel, Australia, UK, New Zealand, and Canada,).

Women in states with restrictive abortion laws are dealing with cases where doctors are refusing to treat women in distress because they fear that they will be jailed. Idaho's biggest hospital has to fly patients out of state to avoid risking their doctors being prosecuted
At 20 weeks, Samantha Casiano found out her fetus would not be compatible with life. Under Texas law, she had to carry the fetus to term, deliver her, and plan her funeral four hours later. 

It's too bad we can't turn back time and laws couldn't be written by OBGYNs. Perhaps there was room for compromise. Now the laws are based on obtuse jargon that has no place governing a woman's body. 













Sunday, May 8, 2022

Whammied by Chase Bank and United

 Do you remember that game show Press Your Luck, where the contestant would yell, "No Whammies?" I was doubled whammied by both United Airlines and Visa-Chase Bank. [The Chase Bank story is the better one, so skip the United Airlines one if you really want to be outraged.] 

The United Airlines story was before Covid had calmed down. All four of us caught it, we had to cancel our tickets to Chicago due to CDC rules, and they wouldn't fully refund our tickets.  

So why didn't you just take the credit? Great question. Well the tickets were extremely expensive, the cost of 2.5 typical tickets. I didn't pay for them myself. And I had already bought tickets for June. Also, I'm a Gold, premier member who purchases tickets four tickets, three times a year. Why couldn't they just cut me a break because 1. it's the law that we couldn't fly and 2. did I mention I buy 12 tickets a year? 

They charged us a total of $960 to cancel the tickets. I appealed the decision and am still waiting to hear back from them. 

Which brings us to Chase Visa. This is one of those stories where I'm thankful that I am a rational person. I could see an irrational person not acting rationally after this. 

After my trip to Chicago in December, I left my Chase Visa credit card there. I immediately called Chase Visa (Thank you for being a valued member, they always say.) to replace it. I've only needed to receive a new credit card or bank card in Israel a couple of times, and it's not a big deal. They send it UPS or DHL, whatever service they are using. 

After the initial call, the card never comes. They give me a UPS tracking number that doesn't work and that I can't use because I'm not a Chase Visa employee. 

Okay, no big deal. These things happen. It's annoying because I only use this one card for the miles, but never mind, everyone is facing employee shortages, I can manage with my bank card. 

I call back and we make sure that they have the correct address, that it's being sent UPS and that it will get here in 7-10 business days. 

7 days pass and I call again. The representative speaks to me a bit too quickly and says it will be there Wednesday. She hangs up the phone. Wednesday passes and no card. (The card goes to my school where there are 24 hours guards there who also kindly take our packages). 

I call again after 10 days and the representative on the phone says that my address was not filled out correctly and it was sent regular mail (on a boat). I laugh bitterly. However, this representative is correcting the mistake. 

Ten days later I get my card. 

But in the meantime, I had spent countless hours and aggravation (more than I wrote about here) on the phone with Chase and I felt I should receive some compensation. On the phone the representative and I came up 19,000 miles. This was based on tickets that I couldn't purchase on my Visa Card. She verified this with her supervisor. I asked her, what if my flight gets canceled? You still get the miles. What if I can rebook them on this card? You still get the miles. This was the agreed upon settlement. I had no reason to believe they would back out because these phone calls are recorded, as well all know.

Ok, great. I'm happy. No harm done,  just hours of my life lost. 

Then, a couple of weeks ago I noticed that the 19,000 miles never appeared on my United Miles. I called Chase Visa and a representative said, "We sent you a letter and you never responded to it."  I asked her why she didn't use the secure mail feature on the app? She said that a great idea and they will try to do that next time. So I waited for the letter. Shockingly it came about a month later in the mail. It read, "Call us about a concern on your account." I called back and this very aggressive woman told me that a committee had found that I was not entitled to the miles because I didn't specify that the card should be sent UPS. 

I told her at no point was I told that there was any question that I would be getting these miles. She said these things always go up for review. I said, even if I had been aware of that, I or the representative use the words UPS and express. She said that's not what the committee found. I asked her to have the committee review the case again. She basically hung up on me. 

So, today I called back and talked to two nicer people. The supervisor was kinder but told me I will be getting no compensation. I asked that all my calls since January be pulled. He said he will do that, but all that will do is train employees to improve Chase Visa's customer service program and that in all honesty I'm never getting those 19,000 miles or any other kind of compensation. 

Have you ever been promised compensation by a company and never received it? I'm at a loss. They have the phone calls where it was promised to me with no threat of investigation. I literally have no recourse except to cut up the credit card. 

And what's interesting is that someone at that corporation said, "You promised her something; we don't want to give her, so make her understand that she doesn't deserve it and she's never getting it and we don't care if she's our customer anymore." 

I know that this isn't a life or death situation. I do feel entitled to be treated in the following ways by these two companies:

  • competently
  • respectfully
  • loyally (as I have been to them)
  • honestly: if a promise is made to me, it shouldn't be broken, and gaslighting is never acceptable, even if a company policy has been broken.